Saturday, 26 May 2012

The twins, well, we had got married and decided why not? we got two why nots lol
they were born at 38 weeks after induction, i didn't think they were ever going to arrive, i was as big as a house and it was boiling weather but arrive they did,
they were good size, healthy babies and we came home 8 hours after they were born, they developed normally as you'd expect. walking, talking Logan had one odd behaviour that he did from about 5 months, he puts hair on the teat of his bottle, but other than that no concerns.

about 2 weeks before their 3rd birthday Logan had what i thought was a febrile convulsion, i wasn't too scared, as jorden had had them, i phoned the ambulance, we went to hospital, no signs of temperature or illness etc so we came home, the next day another and the same thing, then about 3 days later he had 2 more then he had one that lasted about 4 Min's the next day, we stayed in hospital that time, it was the longest i had been away from the others, all sorts of tests were run, EEGs, MRIs bloods, urine etc he had two more seizures he was diagnosed with epilepsy the day before their 3rd birthday. he continued to have seizures, and more and more types, he has tonic clonic seizures, drop attacks, absences, jerks, twitches in limbs, twitches in face, stiffening, and lip smacking seizures. about two months ago he was diagnosed with myoclonic astatic syndrome, its resistant to medication and so far he has not had a seizure free day in about 6 months. he has lost certain abilities and learning seems to be slowing down, he has lost speech and talks like a baby (not the nearly 4 year old that he is)
he is also displaying unusual behaviours, he licks walls, draws circles and lines, and only circles and lines, he now eats hair as well as adding it to drinks, he spins and flaps his hands and feet, he walks on tip toes and flaps his ear when excited, he makes lines with bricks, in fact anything he can get hold of and has developed and aversion to food, to say this concerns me is an understatement.
other than that, my little man is a star, he never complains, he always has a smile and is generally lovely and a true fighter, none of this gets him down and i am so so proud.

and last but by no means least, Jeannie, she is a real star, with such demanding brothers, she never ever becomes a wall flower, she is funny and sweet and very very cheeky,
she loves people and trying new things, and although small that never stops her, she makes me proud every day xxxxxxx

No comments:

Post a Comment