Saturday, 26 May 2012

an insight into our family and the additional needs within



hi all, I'm not really sure where to start, but i guess an outline of what i will be talking about is a good start. i want to share our experiences of living with special needs in a family, we have 3 beautiful children, 2 of them have additional needs.

my family consists of me, Kelly, 26 my husband Simon also 26, our eldest son, Jorden, nearly 9 and 3 year old boy/girl twins Logan and Jeannie. 2 dogs and a snake.
jorden had high functioning autism and oppositional defiant disorder, Logan has epilepsy (myoclonic astatic syndrome) and is showing signs of learning difficulties and sensory issues. Jeannie is a very happy and perfectly healthy little girl.

between us, friends and other family members, we have created our 'own little world'. its not much but its ours and i feel privileged to be mother to 3 amazing children.

Simon and i met at school, and 'got together' just after, (awwww how sweet, right? lol) when i was 17 i fell pregnant with jorden,he was born 5 days late, all wrinkly and old man like and perfect, when he was about 18 months old i saw something in him i had seen before (i have 3 brothers that all have adhd, then other conditions, ocd, kleptomania, selective mutism, asd etc between them) he would build the most amazing wooden train tracks, set up all the trains and figures and then.............just look at it for hours, he didn't play with it and would get mad if you tried to. he would spin, or run end to end of the house, he didn't talk until just after his 2nd birthday but could say words like sausage, Mississippi, and turtle. he was out of nappies by 16 months, he seemed to just watch the world at a distance but not take part, he didn't want hugs or kisses, he didn't eat or sleep but always had so much energy, so i went to my health visitor, i was told that 'of course you find him difficult your so young' or 'maybe you need a parenting course' i was so confused, i did the right thing, i asked for help, i didn't struggle with him, i never had, we didn't even get a baby sitter until he was two, we did it on our own and yet they didn't believe me, and all the professionals continued not to help me for 7 years, Ive had everything thrown at me as to why he is the was the way he was here's the list,
hes spirited
he hits you because he trusts you
he is frustrated because hes so clever
its character
hes quirky
its because your young
its because you had the twins
its because you have depression/anxiety
it seems harder because your tired
there is more but i feel you may stop reading lol, anyway we continued on with trying to get help, as he got older, he got more and more frustrated, the only real friend he has made is a lad who is also asd. he got more violent, and destructive and most upsetting more distant, one day after he had broken yet another door, refused another meal and kicked off about everything i went back to the doctors and the school and finally, they listened (i was sobbing like a baby and begging for help)  and the process had started, and about 6 weeks ago he was diagnosed, in the space of two visits to CAHMS,
Jorden is a lovely little (and i do mean little) boy, who is bright and on the good days funny and kind, yes, he swears and hits out and gets so so mad, but because he doesn't understand the world like we do,

next time......my twins.xx good night and thank you for reading xxx

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