I'm feeling a little bit dazed today, its been a strange week so far but the only way is up and all that jazz.
i have had a phone call from the hospital due to Logan's clusters of seizures, we were hoping that they were going to say it would just be a tweak in meds, unfortunately not, a whole meds change is in order. need to wait until tomorrow to find out what that will be. we are also keeping our fingers crossed that another hospital visit is not needed.
the twins will be 4 this month! my babies, not so much anymore lol, its been a very long year and hopefully a good birthday party is what we need to turn it around? or is that just wishful thinking?
xxxxxxxxxxxxx
Wednesday, 6 June 2012
Monday, 4 June 2012
so its been a little while, things have been busy.
they had lots of jubilee celebrations at Jordens school and that was all a bit much for him although he did enjoy it, one example, they had their may day dancing and due to the weather they started a little bit early so ks2 had to do their dancing again, jorden was not OK with this, he did it but i got shouted at at the end, "we only should have done it once and we had to do it twice" he was very cross but his teacher was amazing and talked him through it.
Logan doesn't seem to be doing so well at the moment, he is having loads of absences and the drop attacks have increased back up to 10-15 a day, he was doing so well on these meds, down to about 6 drops a day. it feels alot like 3 steps forward then sprinting back, i just wish i could help him, but as always he smiles and gets on with it, no complaints. we have also noticed an increase in facial twitches. but these things are sent to try us, and try us they do. tonight he fell asleep at 10 past 10, he was exhausted but just wouldn't give in, it makes me so sad that he misses so much from either seizures or just being tired.
Jorden has developed a new "thing" he repeats the last word of each of your sentences, its becoming very annoying, i know that he cant help it but that doesn't stop it getting to us. its so hard to teach him that it annoys people when he just doesn't get that other people have feelings or are affected by his actions
Jeannie has also started being very clingy which is very unlike her, but she follows me around at the moment and wont leave my side.
I'm going to catch some zzzzzzz's while the kids are still asleep, good night xxx
they had lots of jubilee celebrations at Jordens school and that was all a bit much for him although he did enjoy it, one example, they had their may day dancing and due to the weather they started a little bit early so ks2 had to do their dancing again, jorden was not OK with this, he did it but i got shouted at at the end, "we only should have done it once and we had to do it twice" he was very cross but his teacher was amazing and talked him through it.
Logan doesn't seem to be doing so well at the moment, he is having loads of absences and the drop attacks have increased back up to 10-15 a day, he was doing so well on these meds, down to about 6 drops a day. it feels alot like 3 steps forward then sprinting back, i just wish i could help him, but as always he smiles and gets on with it, no complaints. we have also noticed an increase in facial twitches. but these things are sent to try us, and try us they do. tonight he fell asleep at 10 past 10, he was exhausted but just wouldn't give in, it makes me so sad that he misses so much from either seizures or just being tired.
Jorden has developed a new "thing" he repeats the last word of each of your sentences, its becoming very annoying, i know that he cant help it but that doesn't stop it getting to us. its so hard to teach him that it annoys people when he just doesn't get that other people have feelings or are affected by his actions
Jeannie has also started being very clingy which is very unlike her, but she follows me around at the moment and wont leave my side.
I'm going to catch some zzzzzzz's while the kids are still asleep, good night xxx
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